Sunday, December 18
Day of Infusions
Greetings Everyone! Hope you're having a great day! Friday was a bit rough. I went to my Endocrinologist for my Osteogenesis Imperfecta. I needed to see where my levels were at to know our medication regime. They took 6 vials. They did a lesser infusion, but the side effects were still a bit rough. Today being Sunday I am still experiencing bone pain. The nausea has settled quite a bit thankfully.
I am to begin a daily injection with a new medication to build my bones. This will continue for two years. I was warned of the side effects with this medication. After which I will receive another medication to sustain the gains from the daily injections. I then will begin another series of infusions.
The daily injection potential risk of Osteosarcoma, possible bone cancer. The medication is Forteo. I have been talking with some of my friends who also have the rare disease that my son and I both have. They have been encouraging me and also telling me how they reacted and responded to the injections.
The little girl in the picture with me has been such a blessing. She's such a sweetheart. She's very special to me.
Grace & Peace,
Posted by Leah