Wednesday, October 1

NEGU!!! What is that you may ask?

Posted by Leah
Good morning, Everyone!  I pray that you are having a wonderful start to your day.  I received this book to read and to give my honest review.  I was not requested to give a certain kind of review.  I will say that this book really pulled at many of my heart strings.  I could really relate to this in many ways.  I have to say our story kind of happened in the same way.  I was notified by our school nurse that she had some concerns about our son and how easily he was breaking bones.  I spoke with her. She and I came to the point that we needed to ask our son's physician about how easily he was breaking bones. We asked for a vitamin D level and for a full bone scan.  His physician ordered the full panel and bone scan.  We learned that he has Osteogenesis Imperfecta. Then we had to determine the type he has. He has type one.  Before we could really come to terms with this and determine our plan for treatment we were called to come to the hospital for infusions.  This was very overwhelming.   I must say that the challenges this family faced and those of us with medical challenges like this are grateful for the support of others. Through this journey we had an unexpected turn in the journey to getting the right balance for treatment with our son.  While at his appointment the doctor pointed out that his eyes were blue, not just in color, but the whites were blue.  This is one of the first signs that are listed for Osteogenesis. The fun personality of our son comes through as he says "My Mama's eyes are blue like mine." His doctor looked and sure enough he agreed; suggested that I be tested as well.  I was and I too have Osteogenesis Imperfecta type 1. This journey we are doing together and we have our special time when we have to go for his infusions.  Before I close, please take the time to get this book and enjoy the read.  I will continue by saying we were blessed to receive a joy jar for our son at his treatment. He was very happy with the things inside; it gave him more courage to go through this and to remember Never Ever Give Up!
Grace & Peace,

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Thank you so much for stopping by! I appreciate all your comments. I do read them all. I just wish I could tell each and everyone of you how much you make my day with the notes of encouragement. Thank you!!!


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